nilchance: original art from a vintage print; art of a woman being struck by lightning (on my meds)
[personal profile] nilchance
My thoughts on disability rights, let me show you them.



Recent Denial Rates for Disability Applications, provided by Disability Blogger

California - In California, 55.5 percent are denied.
Texas - In Texas, 61.5 percent are denied.
Pennsylvania - In pennsylvania 55.1 percent are denied.
Wisconsin - 62.6 percent denied.
Washington - 58.9 percent denied.
Virginia - 61.6 percent denied.
Massachusetts - 54.7 percent denied.
Maryland - 66 percent denied.
Michigan- 64.1 percent denied.
Minnesota - 57.6 percent denied.
Mississippi - 72.8 percent denied.
Missouri - 66.8 percent denied.
Nevada - 50.4 percent denied.
New Jersey - 50 percent denied.
New Mexico - 59.6 percent denied.
New York - 61.9 percent denied.
North Carolina - 67.2 percent denied.
Ohio - 71.1 percent denied.
Oklahoma - 66.1 percent denied.
Oregon - 66.3 percent denied.
Arizona - 53.4 percent denied.
Arkansas - 63.2 percent denied.
Colorado - 73.7 percent denied.
Florida - In Florida, 64.9 percent are denied.
Georgia - 71.8 percent denied.
Illinois - 61.2 percent denied.
Indiana - 67.8 percent denied.
Kansas - 67.3 percent denied.
Kentucky - 67.7 percent denied.
Louisiana - 68.8 percent denied.
Tennessee - 74.3 percent denied.
Alabama - 70.6 percent denied.
Connecticut - 62.2 percent denied.
Utah - 69.8 percent denied.


These are the people who could afford to apply for disability. Who went months without income to qualify, yet scrounged up the cash to pay a lawyer. These are the people who scraped through for groceries, pills, doctors visits, wheelchairs, chemotherapy, child care.

These are the people who filled out humiliating forms that required them to state over and over again that they had nothing to contribute to society. That they couldn't work. That they were broken and needed help. These are the people who went in front of county boards to say to them, "I can't."

These are the people who went through that and were refused.

The media pushes the idea that everyone is trying to cheat the system. That people file for disability for acne and broken fingernails. And there is that minority; I work in disability services, and I've seen people try to claim services on false grounds. But in trying to get rid of the dishonest minority (which is estimated at the MOST as 5% of all cases), the government is screwing more than half of the people who apply.

I look at that and think, that could be me. That might still be me. I'm textbook fibro in my mid-20s, when most patients are diagnosed in their 40s-50s. I have chronic daily headache. I suspect that I have CFS/ME. There are times when I miss 2-3 days of work a week. I work in disability services, I'm lucky that way, but still I've had my boss request medical records and second-guess my doctors. I've had a supervisor suggest in an official context that I need therapy.

I'm one of the lucky ones. I don't have cancer. I can work. I'm not in a wheelchair yet. I have an invisible condition that was verified by a doctor. I'm not bipolar or schizophrenic. I don't pay rent. I have insurance. I don't have kids. I'm so goddamn lucky in this economy. And I could still slip. Anyone could. Being able-bodied is a temporary condition.

Confession: my mom is on disability. She has advanced MS and bipolar disorder. She was granted full service-connected status as a veteran, and disability benefits as well. She's one of the minority from Illinois who won her case. And she is goddamn miserable to be retired. She's a brilliant woman trapped in a failing body. She's running out of books to read and movies to watch. She's 54 and she feels like she's already considered dead. And the government still has watchdogs overlooking her case and those like hers, making sure that the person is still disabled, making sure that they're not cheating.

Only one presidential candidate has a public policy on disability. (Obama, for the record.) McCain's policy is 'don't get disabled.' Returning wounded veterans are being asked to return their signing bonus. The people above went to the government to ask for the disability benefits that they funded with their paychecks through years of service, through working, and the government said simply, 'fuck you, you're faking it.'

I'm afraid for our country. I'm afraid for myself.

Re: A question if I may?

Date: 2008-06-04 01:10 pm (UTC)
From: [identity profile] nilchance.livejournal.com
You can certainly ask! I don't promise to know the answers, but I'll help direct you the best I can.

Re: A question if I may?

Date: 2008-09-17 03:15 am (UTC)
From: [identity profile] tobemeagain.livejournal.com
Sorry for the 3 month delay in the question return, but I was waiting to hear something back from Social Security. I got turned down for SSI not because I didn't qualify medically, but because I was on my mohter's bank account; that no longer applies. Social Security didn't care about that. I received a letter saying they will come back with a ruling on 9/24, they wanted to see if my condition stablized. I've already psyched myself out that I will be declined at first. But all of my docs, Long Term Disability Insurance and SSI all believe that I would win an appeal. I just am uncertain what that would entail and how to do it. I know usually a lawyer is involved, but I'm kind of at a loss. I figure I need to be prepared for my next steps. I really wish my vision would get better, but after 5 months the opthomologist said the damage to the optic nerve was permanent, and today after 9 months the neurologist agrees. Essentially I will have an optical migraine the rest of my life because the blood vessels of my right eye won't return the blood flow to my optic nerve. I can't work under those conditions, I can barely read or drive.
If you have any advice or guidance it would be greatly appreciated. Thank you.

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